EXPLORING PSYCHOLOGICAL RESPONSES TO THE STRESSOR OF MUSCULAR DYSTROPHY PATIENTS IN MALAYSIA: A QUALITATIVE STUDY

Received 2022-01-15; Accepted 2022-08-11; Published 2022-12-31

Abstract

Muscular Dystrophy is a diverse group of acquired and inherited neuromuscular conditions that cause progressive muscle wasting and weakness, with varying degrees of pain and fatigue. In some cases, cardiac and respiratory complications are involved. As a result, there is a decline in mobility which leads to slowed walking, tripping and falls with some cases requiring walking aids or wheelchairs. The aim of this study is to explore the psychological responses to the stressor of Muscular Dystrophy patients. This study employs qualitative approach which used interviews for its data collection method. The participants involved in this study are one individual with Muscular Dystrophy disease, two parents with a Muscular Dystrophy child, one Muscular Dystrophy medical specialist, two physiotherapists with Muscular Dystrophy patients and one occupational therapist with Muscular Dystrophy patients. The responses to stressor brought up by the participants are shock and denial, anxiety, anger and guilt, and depression, demotivation, and low fighting spirit. Individuals with Muscular Dystrophy and their parents respond negatively to Muscular Dystrophy disease.